Poppy's Scan Results - March 2011 - a bit tricky...

Photo courtesy of Rob Price Photography Tamworth

Hi Everyone,

Just a really quick update. Poppy went 6 months between scans for the first time since her diagnosis 7 years ago. This led us into a little bit of complacency, especially as Poppy is so so well.

Unfortunately, there has been a tiny amount of growth in her tumour. We mean teeny-tiny too...0.8mm x 1mm, but still that dreaded word 'growth'.

Now this could be caused by any number of things...

Poppy found it very difficult to keep still during her scan, this can dramatically affect the images - that's our hope, that she moved enough to cause this change!!
Poppy has been having daily growth hormone injections for 10 months, she has grown over 5" in that time, a huge amount, there is a chance that the tumour has been affected by this growth spurt too.
These tumours do fluctuate, it may well just stabilise again on it's own.

So the next steps are....

Put Poppy back onto 3 monthly scans to watch this tumour very closely.
Meet with her Endocrinologist to discuss lowering or stopping her growth hormones.
Wait very patiently, thinking lots of positive thoughts, pray very hard & hopefully this will just be a blip & we can all breathe out again at Poppy's next scan.

On a positive note, a section of tumour on Poppy's brain stem had shrunk...woohoo!!!! And also, Poppy's eye test was stable & she is doing amazingly - looking forward to her dancing show next weekend when she will be in 6 dances!

So, this wretched tumour has made sure that we are all keeping our eyes wide open, hopefully just a tiny blip that will soon be over.

It's our 6th annual ball on Saturday, we can't wait!! Our total raised for BCH is now £127,000...we are so pleased!!

Love to everyone & thanks in advance for your positive thoughts & prayers,

Lisa, Brian, Poppy & Lily x